Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.
Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:
By Tetiana Mykhailova | Executive director
Dear friends, Thank you for your continued support of our foundation’s projects and for standing with Ukrainian families living with rare diseases. Today, we would like to share one of the... Read the full report ›By Tetiana Mykhailova | Executive director
Dear friends, We would like to share with you another story of how genetic diagnostics can change the life of a family that has spent years without an answer to the question: what is wrong with my... Read the full report ›By Tetiana Mykhailova | Executive director
We are happy to share an important update with you. Finally, thanks to the joint efforts of the NGO “Rare Diseases of Ukraine”, Max’s parents, and our foundation, the extremely... Read the full report ›
