Genetic Testing for Children's Rare Diseases Supporting Ukrainians living with Rare Diseases Supporting Ukrainians living with Rare Diseases Supporting Ukrainians living with Rare Diseases

CF Orphanni Synytsi

Org #97172
Vetted since 2021
2018
year founded
$619,661
raised on GlobalGiving
5
years fundraising
0
projects funded
* Amounts in US Dollars

Mission

Supporting people living with rare (orphan) diseases in Ukraine with life-saving medicines and medical care. Advocating for rights of patients with rare diseases to treatment Rare diseases are incurable, lifelong, disabling and require expensive treatment. Most of patients are children.

Project Leaders
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Tetiana Mykhailova
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012
Organization Information
7, Rusanivsky boulevard, office 3
Kyiv, Kyiv 02154
Ukraine
+380939120012

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:

A Venous Port for Artem's Treatment

By Tetiana Mykhailova | Executive director

Dear friends, Thank you for your continued support of our foundation’s projects and for standing with Ukrainian families living with rare diseases. Today, we would like to share how your support... Read the full report ›

Genetic Testing for Better Care for Eva

By Tetiana Mykhailova | Executive director

Dear friends, We would like to share 2-year-old Eva’s story and tell you how your support helps children access important medical tests. Thanks to our generous donors, in August our foundation... Read the full report ›

Supporting People with Epidermolysis Bullosa

By Tetiana Mykhailova | Executive director

Dear friends, Thank you for your continued support of our foundation’s projects and for standing with Ukrainian families living with rare diseases. Today, we would like to share one of the... Read the full report ›
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