Help 100 Sickle Cell Anaemia Children in Uganda

Sickle Cell anaemia is a genetic disease with a power to change the identity of the patient. Carrier or Sufferer tag defines ‘how’ and ‘how long’ patient will live. The life expectancy of persons with sickle cell anaemia is reduced substantially due to limited medical resources available for tribal population. This disease is common in tribal community thereby making it all the worse due to lack of screening, diagnosis and right treatment. Some patients, however, can remain without symptoms for years, while others do not survive infancy or early childhood. 

SCOEN’s regular screening camps and treatment proved very fruitful in limiting the severity of this fatal disease. Most patients suffer pain crises, fatigue, liver/spleen related disturbances and progressive tissue and organ damage. Impaired growth and development is the painful emotional trauma that is endured by parents and children with sickle cell anaemia.

We strongly feel that there is a Need to change the outlook towards patients of Sickle Cell Anaemia in the society. Any change begins with us as an individual. There are many things which an individual can help to sickle cell patients. Changing attitude and outlook towards their requirements is just the beginning.

Within camps we distributed free sweaters and blankets to the needy. Cold weather triggers their pain and hence greater chance of sickling crisis.

During this camp we received a special appreciation as district councils who visited our camp and appreciated our work. He also offered his full support for sickle cell awareness drive and treatment.

What you can do for Sickle Cell Patients:

1. Change your outlook towards sickle cell patients and their disease. Even though disease cannot be treated there are a whole lot of things which can be done for children and patients to let them enjoy their limited time.
2. Talk more about sickle cell anaemia at social gatherings and media.
3. Make people and government aware about the need of help 
4. Sickle Cell Patients are suffering with chronic problems however superficially they might sound normal for you. Be sympathetic towards their needs. Take care of them.
5. Donate sweaters, nutritional supplements or other regular medicines. Try to reduce their financial burden. Have donors in your contact list? Or you want to donate? Help them to find a cause for that donation. 
6. Sponsor a child for education/medicines or for advanced treatment.
7. Sponsor a sickle cell family.
8. Volunteer for the awareness of this deadly disease.
9. Participate and support Screening camps, treatment services.

 We provide care and support to all those affected by Sickle Cell as well as other healthcare Support which include:

• Nutritional supplements for children with Sickle Cell
• Information resources
• Sickle Cell Advice and counselling  

Your donations bringhope, love and bring smiles on the faces of sickle cell patients.

Please write to us for comments and for volunteering for fund raising activities.