Help 100 Sickle Cell Anaemia Children in Uganda

SCOEN works to increase public knowledge and raise awareness about Sickle Cell Disease. This alludes to the fact that home care is the most important for sickle cell patients, which greatly reduces the incidence of crises and need for hospital care.

One of the greatest Ugandans who ever lived was Philly Bongoley Lutaya who in his own words gave Aids “a face". Taking on his philosophy is Ruth - (Not real names) sickle cell patient. 

Ruth soon realized that people would rather sweep sickle cell under the carpet and forget about it... she knew only too well the stigma and discrimination faced by people with sickle cell in Uganda. 

Yet once armed with scientific facts as to the cause of sickle cell disease, Ruth committed herself, a number of other patients together with several health workers in order to change this state of affairs. 

Sickle cell community outreach

In the previos quarter we carried out awareness activities aimed at having communities of sickle cell disease and its social connotations. Before the outreach announcements ere made to inform the community about the event this costed some dollars the genorous people here gave in.

As part of the event, sickle cell information is shared particularly what sickle cell is, how it is caused and how participants can prevent it. In addition, sickle cell screening is offered so as to enable participants know their genotype.

Recommendations

There is need for the formulation of strategies to encourage male involvement in SCD campaigns. It is essential for the inclusion of SCD in existing health education programs both at the community and health center settings/levels.

More effort needs to be done to promote sickle cell awareness in rural communities. To carry on with this ctivities we need more dolllars to reach more 5 communities in January 2024.

our sponsorship helps these children have a sustainable life. Health is a state of complete physical, mental and social well-being, and not merely the absence of disease or infirmity. It also includes having access to drinking water, healthy foods and beverages, clean and safe environment, appropriate clothes, healthcare, mental stimulation, access to the outdoors, and loving relationships. Education is vital to breaking the cycle of poverty but school in Uganda is not free. As a Child Sponsor, you will make a huge difference in the life of vulnerable child by giving them the gift of education.

This is a hereditary disease in which red blood cells take on a very sickle-like shape and, as a result, cannot perform all their functions as they should. Although it is widespread throughout the world, 80% of people with this disease live in sub-Saharan Africa, where the condition is often not diagnosed until it manifests its most severe symptoms.

Chronic diseases in Africa are a major cause for concern for the pandemic's progress, greatly increasing the average mortality rate.

The outreach activities were successful with total 153 beneficiaries reached, 23 received food, sanitation item in kind this includes, Miaze flour, egg and soap etc..

 We rely on your kind donations to keep doing the work we do. Every donation allows us to reach more children, run more activities, and improve the lives of those living with sickle cell.

 Please don’t forget to share this cause with your friend and family. We appreciated your generosity for every dollar you give, we know every penny counts. Making your donations today and your love go further!

6 children have received the HYDROXYUREA for 11 months now and the medication have been effective to this children. We cant share their picture publically right because of child protection policies governing our activities.

We strongly feel that there is a Need to change the outlook towards patients of Sickle Cell Anaemia in the society. Any change begins with us as an individual. There are many things which an individual can help to sickle cell patients. Changing attitude and outlook towards their requirements is just the beginning.

Within camps we distributed free sweaters and blankets to the needy. Cold weather triggers their pain and hence greater chance of sickling crisis.

During this camp we received a special appreciation as district councils who visited our camp and appreciated our work. He also offered his full support for sickle cell awareness drive and treatment.

What you can do for Sickle Cell Patients:

1. Change your outlook towards sickle cell patients and their disease. Even though disease cannot be treated there are a whole lot of things which can be done for children and patients to let them enjoy their limited time.
2. Talk more about sickle cell anaemia at social gatherings and media.
3. Make people and government aware about the need of help 
4. Sickle Cell Patients are suffering with chronic problems however superficially they might sound normal for you. Be sympathetic towards their needs. Take care of them.
5. Donate sweaters, nutritional supplements or other regular medicines. Try to reduce their financial burden. Have donors in your contact list? Or you want to donate? Help them to find a cause for that donation. 
6. Sponsor a child for education/medicines or for advanced treatment.
7. Sponsor a sickle cell family.
8. Volunteer for the awareness of this deadly disease.
9. Participate and support Screening camps, treatment services.

 We provide care and support to all those affected by Sickle Cell as well as other healthcare Support which include:

• Nutritional supplements for children with Sickle Cell
• Information resources
• Sickle Cell Advice and counselling  

Your donations bringhope, love and bring smiles on the faces of sickle cell patients.

Thank you