Help 100 Sickle Cell Anaemia Children in Uganda

SCOEN works to increase public knowledge and raise awareness about Sickle Cell Disease. This alludes to the fact that home care is the most important for sickle cell patients, which greatly reduces the incidence of crises and need for hospital care.

One of the greatest Ugandans who ever lived was Philly Bongoley Lutaya who in his own words gave Aids “a face". Taking on his philosophy is Ruth - (Not real names) sickle cell patient. 

Ruth soon realized that people would rather sweep sickle cell under the carpet and forget about it... she knew only too well the stigma and discrimination faced by people with sickle cell in Uganda. 

Yet once armed with scientific facts as to the cause of sickle cell disease, Ruth committed herself, a number of other patients together with several health workers in order to change this state of affairs. 

Sickle cell community outreach

In the previos quarter we carried out awareness activities aimed at having communities of sickle cell disease and its social connotations. Before the outreach announcements ere made to inform the community about the event this costed some dollars the genorous people here gave in.

As part of the event, sickle cell information is shared particularly what sickle cell is, how it is caused and how participants can prevent it. In addition, sickle cell screening is offered so as to enable participants know their genotype.

Recommendations

There is need for the formulation of strategies to encourage male involvement in SCD campaigns. It is essential for the inclusion of SCD in existing health education programs both at the community and health center settings/levels.

More effort needs to be done to promote sickle cell awareness in rural communities. To carry on with this ctivities we need more dolllars to reach more 5 communities in January 2024.