Help 100 Sickle Cell Anaemia Children in Uganda

Compassion hearts is a call for community to step up, find little ways to help Sicklecell anaemia children during COVID-19. The rapid spread of COVID-19 has meant theSickle cell anaemia children we support have been disconnected from us for over 32days. These families are not equipped to deal with the pandemic. With all diseases,the Sickle cell anaemia child is always most at risk. We need to provide information,essential items and support to ensure these families we support are safe.

The project works to will help us provide information, care kits-emergency supplieslike; sickle cell treatment - HYDROXYUREA TREATMENT recommended, food, soap &sanitary products for Sickle cell anaemia children and their loved one. Also withcontinue our essential counselling programme to these families on phone to ensurethey are alone.

What we have accomplished

Compassion hearts: Serving COVID19 in sickle-child has reached 20 sickle cellanemic children with 10Kgs of Maize Flour - Posho, with 5Kgs of rice, 5Kgs of bean, 2Bars of soap and liquid soap. The project has also engaged the caretakers of thechildren during the home visit and the delivery of the food items on the challengesthey go through, what and how they think should be done to minimise the crisis –painful attack on the children. The food items were delivered door to door to avoidattracting the gathering of people so as to combat the spread of COVID-19.

We have also conducted COVID-19 Cell Disease: Frequently Asked Questions sessionthat surely helped the caretakers and Sickle Advice for family members andcaregivers - Family members and caregivers of people with sickle cell disease

Challenges

There were few challenges and we were able to overcome, this included floods in one sub county of Kolir, that made out door to door delivery difficult it increased the cost of travel/delivery, the beans were very scarce and expensive.

Difference that your donation made

The grant has enabled us to provide at least 25 meals for the sickle cell anaemicchild which was challenging many of the caregivers could not access markets oreven sell their own produce to feed their children with total lockdown that wasimplemented.

stigma and myths about sickle cell disease are widespread in these communities.Stigmatisation isolates sickle-cell patients and their families from society. In manycases, women with sick children are abandoned by their husbands, whichcomplicates their financial situation and, by extension, access to treatment. Withthis project we able to unite one family (the husband, wife and children) thehusband had abandoned his family. The family has 5 sickle cell children out of 6, thisso breaking.

This messaged has made rounds in the community and we are proud of the your generosity that has given us the greenlight to change our communities, information is power and a step to change!

For 6years, the SCOEN has been delivering research and educational projects, supporting individuals and families and influencing policy.

As well as celebrating the achievements SCOEN, we need your help to ensure we can continue to make a positive difference to people affected by Sickle Cell Disease over the next 40 years.

Your support is invaluable to us. We're asking you to fundraise, donate, take part in, or run your own event, volunteer or help us raise awareness. Every bit of help from you will make a difference.

Please help us to achieve $ 43,640 and make our appeal a success!

very year about 12,000 to 16,000 children below five years die of sickle cell disease with districts of Teso Sub Region witnessing a high burden with a prevalence of 20% and a disease burden ranging between 1% to 5%.

We rely on your kind donations to keep doing the work we do. Every donation allows us to reach more children, run more activities, and improve the lives of those living with sickle cell.

Please don’t forget to share this cause with your friend and family. We appreciated your generosity for every dollar you give, we know every penny counts. Making your donations today and your love go further!

4 children have received the HYDROXYUREA  for 2 months now and the medication have been effective to this children. We cant share their picture publically right because of child protection policies governing our activities.

 Thank you

SCOEN Team