Physical Health Pakistan Project #44938

Save lives of Children with Thalassemia

by Al-Mustafa Welfare Society

Project Report | Dec 18, 2023
Bright Smiles, Healthy Lives; Transforming Through Al-Mustafa Thalassemia Day Care Centre

By Ahmed Raza | Project Leader

In a quest to provide comprehensive care for Thalassemia patients in the community, the Al Mustafa Welfare Society has embarked on an incredible journey. Initially managing a Thalassemia department at Al-Mustafa Hospital, they quickly recognized the need for expansion due to the growing number of patients. On 15 August, they unveiled their latest venture - a state-of-the-art Thalassemia Day Care Center. This report aims to share the exciting progress made by society and express gratitude to the generous donors whose support made this dream a reality.

Facilities at the Thalassemia Day Care Center:

The Al Mustafa Welfare Society's Thalassemia Day Care Center is a beacon of hope for children dealing with this challenging condition. Here are the remarkable facilities that have brought joy and improved the lives of countless children and their families:

1. Treatment Units:

The heart of the centre lies within ten specialized treatment units. These units are equipped with cutting-edge technology and resources to provide Thalassemia patients with various medical procedures and exceptional care.

2. Kids Play Area:

Understanding the importance of overall well-being, the centre has created a dedicated and well-designed play area exclusively for children with Thalassemia. This space fosters growth, happiness, and a chance for children to forget their worries.

3. Blood Transfusion Services:

Efficient and streamlined services are in place to meet the crucial need for blood transfusions among Thalassemia patients. The center ensures timely and safe transfusions, giving patients renewed vitality and vitality.

4. Chelation Therapy Services:

One of the most important treatments for Thalassemia patients is chelation therapy. The centre boasts optimized facilities for administrating this therapy, ensuring that patients receive the care they require.

5. Hemoglobin Level Checkup:

To tailor treatment plans accordingly, regular and precise monitoring of haemoglobin levels is conducted. This allows for a more personalized approach, ensuring the best care for each patient.

6. Routine Checkup Facilities:

Early detection is key to addressing potential complications. The center offers comprehensive facilities for routine health checkups. This proactive approach safeguards the health of Thalassemia patients and prevents any complications from worsening.

7. Medication Management:

Efficient systems are in place for managing medications, ensuring adherence, and proper administration. This meticulous approach guarantees that patients receive the necessary medications on time, promoting their well-being.

8. Parent Counseling Services:

Thalassemia affects not only the children but also their parents. The center offers dedicated counselling services to parents, providing them with the necessary emotional support and educational resources. These services strengthen the bond between families and provide them with the tools to navigate the challenges they face.

Conclusion:

Thanks to the collective efforts of generous donors and the tireless work of the Al Mustafa Welfare Society, the Thalassemia Day Care Center is making a significant impact in the lives of children and families battling this condition. The centre's diverse and compassionate facilities are transforming gloomy days into moments of hope and joy. Each smile that lights up a child's face is a testament to the incredible difference that donors have made. Let's continue supporting the Al Mustafa Welfare Society as they strive to create a brighter future for Thalassemia patients. Together, we can make a lasting difference in their lives.

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Jun 9, 2023
Al-Mustafa Thalassemia Family has now reached to 218 Members

By Sarah Ahmed | Project Leader

Anniversary Celebrations

Al-Mustafa Thalassemia Unit's Anniversary is celebrated yearly with a big bash, and all the children and their families celebrate and enjoy it together. This year, the venue was Askari Amusement Park. The kids went crazy with its colourful, crazy rides and festive vibe.

Governor House Visit

The Governor House of Sindh is one of Pakistan's most beautiful historic buildings. Everyone wishes to visit this building at least once in their lives. The Governor of Sindh, Mr Tessori, shows extra love and care towards those in need, especially the children. He frequently invites different groups of children for dinner or lunch at the Governor's House. Our thalassemia family also got an invitation for dinner, and the children were ecstatic. Visiting the most prestigious state house in the province as a guest was no less than an honour. It boosted their confidence and made them feel important. Such events are a great source of increasing hope and positively affect our children's overall health.

Quarterly Progress

In other news, our Thalassemia family has grown by ten new patients, and now we have 212 patients registered at Al-Mustafa Thalassemia Unit.

Blood Transfusions Performed in the Past Quarter

More severe forms of thalassemia often require blood transfusions.

Month No. Of Patients

January 127

February 135

March 141

April 117

May 135

Hb and other Investigations Performed in the Past Quarter

Different investigations must be performed before blood transfusion and routine checkups. These investigations include Hb, CBC, Urea, Creatinine, Electrolytes and Calcium.

Month No. Of Patients

January 168

February 180

March 191

April 194

May 184

Iron Chelation Therapy Provided in the Past Quarter

This treatment is to remove excessive iron from the blood.

Month No. Of Patients

January 80

February 83

March 80

April 51

May 75

We will come back to you soon with more exciting updates.

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Jan 16, 2023
The Inspiring Story of a Little Warrior

By Ahmed Raza | Project Leader

Assalam-o-Alaikum, and a happy New Year to you and your family.

There are many inspiring stories scattered around us, but few are heart-touching. This is the story of a 10-year-old boy who outshined many around him.

A Story Of Courage

Mr and Mrs Abdullah were above the moon when they had their fourth child, a cute baby boy named Muhammad. Abdullah worked as a labourer, and his income was limited, but seeing the angelic smile of his baby made him forget all the worries of life. Little did they know that life would take an unpleasant and unexpected turn. They were clueless why their child's health continually deteriorated despite taking complete care of the baby. After visiting the physicians, it was revealed that their little boy had thalassemia. The parents were totally unaware of the severity of this deadly disease. The bright sunny day felt like a night when they learned that this is a genetic disorder, which remains with life, and life expectancy is pretty low.

For a few days, they were devastated, but the couple decided to fight for the life of their dear beloved child. They started looking for a cure, but the treatment itself was expensive. In Pakistan, how much does a labourer earn? This reality shattered Abdullah and his wife, who had started gathering their hopes for their boy. The initial three years were terrible, but one day someone told them about Al-Mustafa thalassemia Unit. It was a life-changing moment for the parents and Muhammad, who had turned 3.

Muhammad got registered immediately, and Al-Mustafa took his whole treatment responsibility. The parents took a relief of sigh. Now, Muhammad is ten years old, he goes to school every day, and as you can see, he is a bright, cheerful and energetic boy who doesn't let this reality stop him from living his life to the fullest; that he suffers from a chronic illness. He gets a Blood transfusion every 15-25 days and receives Iron chelation therapy and other treatments.

The most applauded part of Al-Mustafa's Thalassemia Unit is that our management keeps the children happy and engaged in fun activities; even when they come for their blood transfusion or to get other treatment procedures done, they are served their favourite things and play with their toys.

Quarterly Progress

In other news, our Thalassemia family has grown by 10 new patients, and now we have 212 patients registered at Al-Mustafa Thalassemia Unit.

Blood Transfusions Performed in the Past Quarter

Month No. Of Patients

September 171

October 192

November 182

December 185

Hb and other Investigations Performed in the Past Quarter

Month No. Of Patients

September 130

October 129

November 182

December 136

Anniversary Celebrations

The Thalassemia unit's Anniversary is celebrated every year with a big bash, and all the children and their whole families celebrate and enjoy it. This year, the venue was an Amusement Park + museum, "The PAF Museum Karachi". With its lush green gardens, gigantic air crafts and fun rides, it is our children's favourite place to party.

We hope that one day you may also join and meet us at one of our parties and be inspired by the courage and cheerfulness of these little champs.

P. S. The actual names of the characters have been replaced by fictitious names in respect of their privacy and to ensure their security, as per the policy of GlobalGiviving Foundation.

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