Physical Health Ecuador Project #49877

Turner syndrome awareness in Ecuador

by Fundacion Ecuatoriana para la ayuda al Sindrome de Turner

Project Report | Apr 5, 2023
Fepast Activities

By Tatiana Pogo | Project Leader

fepast activities

Some activities have been carried out in these months, such as leadership training for the board of directors of fepast, collaboration with the Ecuadorian Federation of Rare Diseases on the day of rare diseases that took place on February 28, I participated in a work table for the creation of rare diseases, members of fepast received dental care thanks to the university of the hemispheres, we supported the Pide foundation in a sit-in at the ministry of health to import safe immunoglobulin for their group of patients, in addition to some facebook live in the issues of heart disease in Turner syndrome also on the issue of how to be recurrent donors of fepast.

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