By Yu Jung Ho | Art Therapist
Icarus is a small, bright, 4-year-old boy living with ichthyosis, a rare genetic skin condition that causes his skin to become extremely dry, red, and prone to painful cracking. Everyday activities, such as bathing, playing on the slide, or even simple movements, can sometimes cause pain. Because of this, Icarus has had to learn from a very young age to be cautious. His teachers describe him as more mature than other children his age. In class, he often notices when others need help and quietly reminds or assists his classmates.
Although Icarus is intellectually capable, living with a visible and painful condition can affect how a child sees himself. Normally Icarus avoids physically demanding activities, but he still longs to move freely like other children. In one morning, he joined other kids on a slide. He was full of joy, but the activity caused his skin to split, leaving him in pain for the rest of the day.
In art therapy, Icarus has shown a rich imagination and a strong curiosity about how things change and grow. In his early sessions, he repeatedly dropped small objects into colored water and watched the mixture transform. The process looked chaotic, as if he was throwing difficult experiences into a volcano. At one point, he added many googly eyes, which seemed to symbolize releasing the feeling of being watched by others. After the dumping phase, he became engaged with kinetic sand, using as a nourishing soil. He grew an ideal home, and then later planted small “seeds” made from clay, which later grew into flowers. These images of destruction, nurture, and growth suggest a hopeful transformation in his inner world.
In these 3 months, through creative exploration in art therapy sessions, Icarus can express emotions that may be difficult to describe, such as pain, frustration, worry, and hope. Now Icarus’ teachers all agree to remind him that he is still young, so that it’s ok not to be perfect. Icarus’ art therapy sessions will go on, helping him discover that he is not defined by his condition, but by his imagination, resilience, and capacity to grow.
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By Mavis Tsai | Project Leader
By Mavis Tsai | Project Leader
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