Home rehabilitation for 50 child with brain tumor

Home rehabilitation for 50 child with brain tumor by IRENE ODV -  1H 2025 REPORT

Brain tumors are the first cause of death in children, yet they have a better chance of being cured than adults. Unfortunately, the treatments often leave important disabilities that require early and intensive rehabilitation, which exploits the plasticity of the central nervous system of children, but which the public health service rarely offers.  

The aim of the project is to provide home rehabilitation services to children being treated for brain tumors at the Bambino Gesu Pediatric Hospital (neuromotor rehabilitation, speech and dysphagia therapy).

Key features of the project are:

• integration between the hospital specialist team and the home assistance and rehabilitation team,
• early management of the patient who receives services appropriate to his stage of the disease,
• "real" integration of social and health services in a single team for the medical, rehabilitation, psychological, welfare.

The result for the for the first half of 2025:

• 163 home physiotherapy services for 48 pediatric patients;
• 24 home speech therapy services for 8 pediatric patients;

In addition to home rehabilitation, we are developing two initiatives aimed at caregivers and adult patients:

• a cycle of monthly webinars dedicated to the training of caregivers.
• an online support group with bi-monthly meetings.

Links:

• http://www.associazioneirene.it

Brain tumors are the first cause of death in children, yet they have a better chance of being cured than adults. Unfortunately, the treatments often leave important disabilities that require early and intensive rehabilitation, which exploits the plasticity of the central nervous system of children, but which the public health service rarely offers.  

The aim of the project is to provide home rehabilitation services to children being treated for brain tumors at the Bambino Gesu Pediatric Hospital (neuromotor rehabilitation, speech and dysphagia therapy).

Key features of the project are:

• integration between the hospital specialist team and the home assistance and rehabilitation team,
• early management of the patient who receives services appropriate to his stage of the disease,
• "real" integration of social and health services in a single team for the medical, rehabilitation, psychological, welfare.

The result for the for the first quarter of 2025:

• 163 home physiotherapy services for 48 pediatric patients;
• 24 home speech therapy services for 8 pediatric patients;

In addition to home rehabilitation, we are developing two initiatives aimed at caregivers and adult patients:

• a cycle of monthly webinars dedicated to the training of caregivers.
• an online support group with bi-monthly meetings.