Helping Colombian children with disabilities

Dearfriend and donor, 

We are pleased to share with you an update on Luciana health status. Some time ago, we shared Luciana story, as she had been diagnosed with congenital cataracts and a detached retina. At that time, we also informed you about the need to conduct various tests and consultations to rule out Marfan syndrome. Today, we reach out to share important developments in her diagnosis and treatment. 

After several medical consultations and specialized studies, it has been confirmed that Luciana has Marfan syndrome, a genetic condition that affects the connective tissue in her body. This diagnosis has allowed us to focus her treatment more precisely and begin more detailed medical monitoring.

Currently, Luciana continues to receive support and specialized medical care in several key areas for her health, including: 

•  Otolaryngology and Otology Consultations: To evaluate and treat potential complications related to her auditory system.
• Genetics Consultations: To better understand her condition and plan the appropriate long-term treatment.
• Ophthalmological Care: We continue treatment for the retinal detachment and are working to preserve her vision.
• Laboratory Tests: To monitor her overall health and assess the progression of her condition.

Thanks to your valuable contribution, Luciana has been able to access these high-quality medical services, which are essential for her well-being and future. 

Despite the significant progress made, Luciana’s treatment journey is still long and requires ongoing monitoring. Consultations, tests, and specialized treatments will continue to be essential to improve her quality of life and manage the effects of Marfan syndrome.

Your support remains crucial. Thanks to the donations we have received so far, we have been able to provide Luciana with access to the medical care she so urgently needs. However, in order to continue her treatment and ensure she receives the care she requires, we still depend on the generosity of people like you.

That’s why we are asking for your help once again. Every donation, big or small, makes a significant difference in Luciana life. With your support, we can continue providing her with access to the consultations, tests, treatments, and medications that are vital to her health.

We are deeply grateful for your generosity and the impact you have had on Luciana life. Thanks to you, she has a real chance at a healthier and more hopeful future.

Thank you for being part of this important journey.

Links:

• YouTube
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• Web page

The pandemic brought a series of challenges that affected many families, and Sara's was no exception. During Sara's complicated birth, the lack of proper medical attention caused serious complications that affected her small brain, resulting in cerebral palsy, which impacts her movement, muscle tone, and posture. Additionally, since then, she has had to cope with episodes of epilepsy. 

Even with the pain of this situation, the family tried to adapt and understand what had happened when tragedy struck once more—the father of Sara was murdered during a robbery. This loss is compounded by the harsh reality of being a migrant family, where access to healthcare services becomes even more difficult. All of this has made it almost impossible to cover the medical and therapeutic needs that Sara requires for proper development. 

Despite Mrs. Goyeidy's efforts, the healthcare system has repeatedly denied Sara the specialized consultations and medical exams she needs, such as orthopedic and physiatry consultations, X-rays, and other essential medical tests for her treatment and progress. Additionally, the provision of an appropriate orthopedic wheelchair to improve her mobility and autonomy. 

We are joining efforts to provide Sara with the orthopedic wheelchair that has allowed her to gain greater autonomy. Today, we continue to seek support to provide Sara with the necessary medical care that will help her recover her health and improve her quality of life. 

Together, we can make a real difference in little Sara's life. Your support will be crucial for her to receive the care she deserves and face a more hopeful future. 

Links:

• Web page
• YouTube
• Facebook