By Mother Union | Project Leader
GUSTUKAS
The best knowledge, even in the smallest steps, of children recovering.Every time I read Gusto’s mom’s letter, I hold my breath. I still read every sentence with anxiety, hoping for the best knowledge.
I know the path to oncology is not straight and smooth. To overcome it requires not only insanely great effort, spiritual strength, but the general concentration and confidence of doctors and parents.
Sometimes when nothing seems to be going on, big things happen even without us noticing.
Gusto's mother Ugne tells about big things in a small person's life:
“We are back from Gusto’s 11th treatment visit to Lausanne.
The departure for this visit was disturbing because Covid did not bypass us either. Fortunately, we managed to recover before the trip, but we did not manage to perform the operation planned in Lithuania (after the removal of the implanted central venous catheter in the skin of the chest), which had to be postponed.
The MRI results of this visit show that in the right eye - the situation remained pleasing (no recurrences or new tumors were detected), but in the left - the cryotherapy-destroyed focus of the previous visit did not disappear completely, so consolidating cryotherapy was used again to strengthen destructive effects).
Recovery from anesthesia was difficult, with many Gusto tears and heartbreaking moans, necessitating an additional dose of painkillers.
The results of an additional MRI scan done for possible damage to the pineal gland were also revealed. According to the interdisciplinary council of doctors, it would be enough for Gustav to repeat the examination of this additional study 1 time. years, as no complications of glandular damage are currently detected.
Closing the door of the ward, I met a mum from Bulgaria who had been seen and known many times ago (after the intraarterial chemotherapy procedures, Gusto and her son's bed were often next to each other). In my eyes and face, I felt an indefinite anxiety that seeped into my thoughts as well.
The results of her son's eye examination over the past six months have been staggeringly improving, with life appearing to be at least partially returning to cancer (in treatment for four years), but this visit has changed dramatically and even required systemic chemotherapy.
I felt and felt, surrounded by fear, once again realized that malignant retinal cancer was unpredictable, with wavy periods of exacerbations and remissions, smashing into shards of healing joy. So our joy is also timid - in general, Gusto's results, so far, improving, are manifestations of stability, which gives hope ...
It is good to know and feel that we are not alone, even in the grip of disease, that there is a world that we can already SEE at least a small part of, and continue to intensively explore, touch, smell, hear, hear ... Thank you very much for the KEY given , little by little, we can unlock more and more areas of the wonderful light of life. "
I breathe my heart in thanking little Gustuk for making another trip to the pediatric clinics in Lausanne, Switzerland. Thanking Mom Ugne for her good news and wishing her a fresh breeze on their great journey to the Olympics of Light and Color.
By PLF Mamu unija | Author
By PLF Mamu unija | Author
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