Rehabilitation for 50 Children with Disabilities

                                                The clock is ticking to double your gift

“Giving Tuesday” the largest amount of donations ($ 500000 by The Bill and Mellinda Gates Foundation) ever matched on a single day on Globalgiving on 29^th November 2016, and “The Year End Fundraising Campaign-2016”-throughout the month of December 2016 are approaching. YOU MADE US PROUD TO BE A PARTNER OF GLOBALGIVING WITH DONATION AMOUNT $13157.56 TILL NOW- GREAT!

Great! You gave more than 200000 Nepalese Rupees last year campaign 2015. This year also we have goal of raising more than 400000 Nepalese rupees. Hope this time also you will help for the most marginalized and deprived group of people in Nepal.  

It is our great pleasure that this time we are reporting you about the participation by our children to an important event on 20^th November, 2016. Yes, it was Child Rights Day (CRC day). Every year this day is celebrated with great enthusiasm because the rights of children with disabilities are not even mentioned in many sectors and also the violence against the Children with Disabilities (CwDs). This time children from Patan CBR participated in the CRC day organized by Lalitpur Sub-Metropolitan City (LSMC), a local government body, at its own office premises among 300 children including some guests. The chief guest of the program was the Chief and Executive Officer from the same office. The program was completely for the children and by the children. There was a dance performance from the three children of Patan CBR organization in a popular song. It created a sensation among the children when they performed a dance. Many surprised that these types of intellectually disabled children can also perform dance. Some children even expressed that there exists these types of CwDs in the society.

Soon after finishing the performance various persons expressed their view in their address to the mass. The chief of the Social welfare department, LSMC expressed his view “if given a chance to the children with these types of intellectual disabilities, they can also do the same thing that the normal children do” he also expressed that the work done by Patan CBR is great and difficult and said others to help for the genuine cause. “We will help continuously to Patan CBR during the days to come as we did during the past” he said.

CBR dance teacher, who has been teaching dance to these children expressed that “it is really a difficult task to teach these types of Intellectual Disable Children. They forget everything they have been taught a day before. I have been teaching this item of dance for them for the last 12 months twice a week still they have a lot to do.

Mother of one child who performed the dance expressed that “I felt proud to my daughter to see she is dancing with such a huge mass. I filmed the dance from the beginning to the last. I thank Patan CBR for this training so that my daughter could perform in the mass”

Also, this time 3 groups from medical students of  LA Trobe University, Australia visited our centre and took the in-depth knowledge about our work. Altogether  14 students alongwith supervisor professor observed our program

Greetings from Nepal!. Thank you all for continuously dona­ting to the children in need. We raised US $13058 till now, AWSOME! We hope we will achieve a “Superstar”, the highest level of partner of GG. This time we are going to participate in the “Little by Little by Little Campaign” which will be held from 29^th Nov to 31^st Dec 2016. Hope we will get support from you this time also as usual. We plan to raise at least $ 2000 for this event.

This time I’m reporting about the change in our children Ram (Name Changed).When he joined Patan CBR 5 months back, he was at the age of 8 years and was from a middle class family. He was born with vaccume delivery and did not cry while birth. He was born after a long delivery time of his mother than normal time of delivery.

When he joined, he could not walk properly even after the support from one person. There was a presence of more dystonic (Dystonia is movement disorder characterized by sustained or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. Dystonic movements are typically patterned, twisting, and may be tremulous) and ataxic (Ataxia is a lack of muscle coordination which may affect speech, eye movements, the ability to swallow, walking, picking up objects and other voluntary movements. A person with persistent ataxia may have damage in the part of the brain that controls muscle coordination - the cerebellum) movement while walking, tip toe gait, does not have right hand grip and has difficulty in speaking.

Immediately after he joined Patan CBR, we assessed him and planned the following activities:

Gym Ball exercise and reaching activities for the core muscle strengthening, from sit position  to stand position with walker, reaching activities for his effective hand functioning, bridging exercise for the core muscle strengthening, walking exercises like stepping on blocks with forward, backward and sideways, stretching tendo achilles, sole of foot deep massage, half kneeling, in prone alternate upper limb reaching and hand motor activities like gripping velcro exercise, keep botton and unbutton of shirt etc.

Our physiotherapist has to say regarding him “with the cooperation from his family and good effort and facilities of CBR he could improve his Activities of Daily Living (ADL) with very short time. I feel very happy to see the change in Ram”.

His grandmother who frequently comes in contact with us said “we are really thankful to the effort of Patan CBR with the improvement in his ADL activities, I felt regret for discontinuing his rehabilitation service at Patan CBR when he joined for the first time 3 years back. He was here at that time for the 3 months only”

Our Physiotherapy coordinator said” it is just because of the donors from GG which helped us in managing resources to continue our services to the marginalized”

We are happy to let you know a small improvement in his daily living activities. Now, he is able to walk with the support of one person’s hand. He has learned how to hold the hand while one give him hand to walk. Now, while walking, he walks slowly and dystonic movement has found to be reduced a lot. Also, he is able to hold object with right hand.

Now our future plan for him is to stand him independently, make indoor walk with walker and make walking independently, further improve the right hand grip, make him able to eat himself, make him able to dress himself.